Yes, we have no other family and there is no way we'd want to leave S with friends, its just too dangerous. We both get support from family overseas so that's good.
We have a really good GP and endocrinologist.
I think what is required is a week's breather to catch up with all that's been happening over the past 6 months.
Part of the problem is that when we are spending most of the time just dealing with all the symptoms its tricky to get down time to plan for the future.
For example I think over one 2 week period we had something like 8 admissions, you get to the point where just staying awake at the appropriate times is an achievement.
The most recent diagnosis is BPD so we'll go with that, the latest symptoms match and it gives us something tangible to understand and handle.
We too had an insulin pump, its a great bit of kit and hopefully S will be getting it back in a year or so.
We also briefly had a trial of a CGM and I can highly recommend it, no more having just 7 to 10 daily data points to try and figure out where the trend is, instead you get more data points and therefore a really good sense of how much and by what rate her BGL is changing.
Going to the hospital after work today to see S. We really miss her.
6:30pm She's absconded from hospital.
